Ruby Hope McKee Starling

So this is the first official post on Ruby's blog. It is still very much 'under construction' as I figure out what features are available and how to best use them. Rather than waiting until I have everything 100% perfect and have a big grand opening (which could be weeks, if ever), I wanted to just open shop and start using it while I continue to tinker with things under the hood and add content. The blog itself should be accessible as RubyHope.com as well as RubyStarling.com. We intend to use this website mainly to document our journey with our daughter as we fight her battle with CDH (congenital diaphragmatic hernia). Regardless of where this journey takes us, we would like to share it with our family, friends and anyone else who is interested, especially those with children also affected by CDH. The plan is to use this to keep everyone up to date on our progress, in place of mass e-mailings or calling everyone. We want to go back and document some of the events that got us here as well as what's going on with us each day. So expect some 'flashback' type posts on her early development and diagnosis to catch you up on how we got where we are.

So where are we?

We currently are at Children's Hospital of Philadelphia (CHOP) getting official in-depth analysis and diagnosis of Ruby's condition. Next week we will be doing the same thing again at Texas Children's Hospital (TCH) in Houston. Then, once we have a better idea of what our situation is and what our options are, we'll make a final decision on where we want to deliver and have Ruby treated.