If you're just now catching up, scroll down below and read the previous updates. Long story short, Ruby had a bad day yesterday but is much, much better today. Here are the promised pictures:
Grandma visited Ruby this week and helped her parents out a bunch:
Grandma babysits Ruby so that mom and dad can take a break and go get a meal or two. She also got her a few cute outfits that we hope she'll be able to wear very soon.
Since Ruby can't really swallow with all those tubes in the way, drool collects in the back of her mouth and it annoys her! This is how Ruby looks when she needs her mouth or tubes suctioned out... YUCK!
All better:
Today is Ruby's 5 week birthday! Yay! Maybe mom & dad will celebrate. There was a big celebration at CHOP last night -- the anual CHOP Children's Prom Night. Since many teens can't make their own prom because they're hospitalized, they bring the prom to CHOP. There was food and music in abundance and kids of all ages had a great time. Here are links to a news story and videos:
- Video 1
- Video 2
In the 2nd video, Lauren's doctor in the tuxedo is also Ruby's cardiologist. It's really heartwarming how they really go all-out for the kids here, but we hope Ruby will get to go to her own prom instead of one in the hospital.
The other big news of the day is that Ruby is getting a new room back on the surgical wing with the other surgical kids. She'll be much closer to all the other nurses that know her and other kids that have similar needs.
Way to go with capturing
Way to go with capturing those facial expressions! that's an amazing little character there, ya know! I know grown ups with less personality.
Did Granny get a bob?
Hey it's tree pollen season here... do you think someone could suction my nose for me?
Drool on Baby Girl! The
Drool on Baby Girl! The look on your face says it al...... So glad your mommy & daddy can see humor where it surfaces and share it.
Yay, Ruby! That's drool's
Yay, Ruby! That's drool's gotta suck. Good thing you have a good mommy and daddy and a team of nurses and doctors to make sure to help get rid of it! Keep getting better little one. Love and hugs from IA
Beautiful pictures. She is
Beautiful pictures. She is precious! Happy 5 weeks sweet, feisty Ruby. Love, Natalie
We are so happy to read that
We are so happy to read that Ruby is doing well. We will not stop praying for her and her parents and the rest of her caretakers. Great, great news. What a beautiful and strong baby. "And so, from the day we heard, we have not ceased to pray for you..."
Who could look so cute with
Who could look so cute with drool in the back of her mouth? What a beauty! I'm so relieved she's doing better. Thanks for the pictures. I think Ruby looks a little like her Grandma! xoxo Sarah PS Don't tease me with the videos again Chris! I need to see some Ruby!
Thanks for all the great
Thanks for all the great updates. I'm so glad to hear Ruby is doing better, even if she is writing her own book.
Hoping the good news continues.
Yuk, I remember well
Yuk, I remember well suctioning times. Poor little ones, Alina really hated them. Ruby looks great, she's got such pretty eyes. We are thinking about you and hoping that she will continue to make good progress.
Ruby has the most beautiful
Ruby has the most beautiful eyes. She is beautiful. We have you in our daily prayers.
Thanks for updating with
Thanks for updating with pictures...poor baby with the drool, who can blame her for getting annoyed??
Wishing you three a peaceful, wonderful, progress filled day.
Love from the 'Lou-
Tami, Chuck and Aisling