The doctors increased her feedings to 35ml today and reduced her morphine from 200mcg to 160mcg. Her versed was reduced to 180mcg yesterday. Ruby did well with her MRI yesterday, although they had to sedate her very heavily for it and as a result, had to increase her vetilator support. But this morning they reduced the vent settings back to their original state and she's doing great with very minimal support. So good, in fact, that they will be extubating her this afternoon. That means that the huge tube in her mouth and much the tape on her face will go away. She'll still have the feeding tube in her nose and the tape for it. And she will most likely have an nasal cannula for some additional oxygen. But it means that there will be less equipment (or maybe different equipment) in the room and one less tube on our tube count!
Current tube count is seven:
- endotracheal tube for breathing
- nasogastric tube for feeding
- right chest tube for pleural effusion
- left chest tube for chylothorax
- scalp IV for morphine & versed
- foot IV for misc meds
- broviac central line in her chest for hal & lipids
Here's Ruby doing her best to get the ET tube out a little early:


I remember earlier this week
I remember earlier this week watching her pulling on the vent tube. She's getting ready! :) Yay, Ruby. Can't wait to see her sweet face with less tape and less tubes!
Woohoo! Ruby is such a rock
Woohoo! Ruby is such a rock star! Amazing progress. :) I'm so happy to hear about the extubation!!! Looking forward to seeing more of her sweet face.
Love from STL,
Jenn
Beuatiful girl, looking so
Beuatiful girl, looking so peaceful. What amazing progress.....I am sending tons of positive vibes for a successful extubation that results in no more endotracheal tubes!!
Love and hugs from the 'Lou,
Tami, Chuck, and Aisling
Way to go Ruby!
Way to go Ruby!
Fantastic news Ruby! Way to
Fantastic news Ruby! Way to go! I'm so excited for all these good changes! Sarah
Yay for Ruby!! Great news.
Yay for Ruby!! Great news. Natalie
Yah-Hoo! Her feedings
Yah-Hoo! Her feedings increased...does she get breastmilk yet? I know it is hard to keep pumping, but if it works, it all pays off in the end! Our children are continuously praying with us for your baby girl.
GREAT progress Little Ruby
GREAT progress Little Ruby Hope!!!
WOW!! I am so happy that
WOW!! I am so happy that Ruby is doing well. I can't wait to see a picture of her whole face. way to go Ruby!!