We had a good Memorial Day. No big changes, just hanging out and resting. We took her Versed down to 160 again and her feeds went up to 50ml. We scooched down her oxygen to about 34%. Incidentally, she's having to wear hospital gowns because the IV in her arm won't allow "normal" clothes to go on. Unfortunately, the only color they come in is baby-boy blue. I think she looks nice in it. Ruby spent most of the day out of her crib with mom and dad:
Afterwards, it was time for bed, so we rolled her up into a little baby burrito.
hello Holly and Chris.... I
hello Holly and Chris....
I have spent the last three hours catching up with beautiful baby Ruby! And it's way past my bed time! But totally worth it. Fortunately, David will take care of Santiago tomorrow morning. It's his turn. Your baby girl is so precious and I am so glad she is doing better... I send you a big, big, big hug! And a big kiss for Ruby. Tell her that I wish her only the best and that I am sure she will have it. Ruby, come to Austin... Santiago would love to play with you!
Love,
alejandra mielke (friend of frances and jim)
You both should be so proud
You both should be so proud of Ruby! She is precious and I'm glad she is doing so well. Bradley continues to keep us up to date on her progress. I'm so happy for you all. I know what it is like to hold that little NICU baby for the first time, and it's the best feeing ever. Keep your head up. She'll be home with you before you know it.
She looks great in blue!!!
She looks great in blue!!! Love the pictures...everyone looks awesome! Chanda
Fantastic pictures! She
Fantastic pictures! She looks great. I love baby burritos!
- J
What a little cutie! Ruby is
What a little cutie! Ruby is coming through CDH with such strength. She is such a beautiful baby and it is so great to see your big smiles holding her!
What a little cutie! Ruby is
What a little cutie! Ruby is coming through CDH with such strength. She is such a beautiful baby and it is so great to see your big smiles holding her!
We all knew that Ruby Rocks!
We all knew that Ruby Rocks! (The exclimation point is obligatory when saying RR's!)
Now we have confirmation that Holly & Chris Rock Ruby!
Keep Rockin you 3! :-)
-President of the Oklahoma Chapter of the Ruby Fan Club
ps. Tell us about her "Nelly" look...is that to protect & heal after having had tape on her face for so long before?
ok, incase anyone else
ok, incase anyone else wondered... 1) the Nelly look is from the tegraderm which is for the tape on her face to stick to because the tegraderm is more friendly on the skin that the mean ole tape would be. 2) Nelly is that rapper guy that would always wear a band-aid on his face as a memorial to a dead friend (or something like that).
I have been reading
I have been reading faithfully about you three.... and to see all these pictures of you both finally getting to hold her... brings happy tears to my eyes, and I am so grateful for that you are able to finally have this. Nothing in the whole wide world beats it, especially after having to wait as long as you did. :) She's just beautiful, and you guys are in my constant positive thoughts.
Chris looks so peaceful and
Chris looks so peaceful and Holly looks so happy. I am so glad to hear that you guys had a relaxing holiday. Love, Natalie
What a wonderful family.
What a wonderful family.
You guys look so much more
You guys look so much more at rest than what you have since she was born. So glad to see your stress is decreasing and that Ruby is getting so much better.
Marilyn
love the smiles and
love the smiles and drool!
the pics say it all!
Glad to know we're not the
Glad to know we're not the only ones who have ever referred to our infant as "baby burrito"! :)
Awww, you guys look so happy. Like Julie said, the difference between what you guys look like now versus those early days really says a lot. I know Ruby still isn't out of the water, but she's definitely swimming a lot faster these days!
Lots of love to the three of you!
Missy, Larry and Anthony
Chris: LOVE the picture of
Chris: LOVE the picture of you and Ruby...Daddy time is so important! Holly: your SMILE says it all!! I remember early on there was a picture of Ruby and Holly was in the background and she looked very sad/worried (of course, it was the day she went on ECMO I believe!) and I remember my heart just ached knowing all you guys were having to go through with great 'unknowns'. I just praise God and tears fill my eyes to see Holly's smile and realize how things are coming together. I'm still praying for progress and also trying to thank God for the progress with as much persistance and ferver as I begged him for the progress. :)
Much Love from the Power family,
Julie Power
WHAT A DIFFERENCE! Nat is
WHAT A DIFFERENCE! Nat is the youth minister for the church Jimmie & Julie attend in Tyler. What had a youth retreat since Friday and we haven't been able to check in since Friday morning! We have had all of the youth praying all weekend and you can see she has come a long way this weekend. This is truly a memorable Memorial day for your little family. Still praying....Nat, Lou Ann, Olivia, Phillip, & Lillie
Love the Pics! Ruby looks so
Love the Pics! Ruby looks so comfortable and you both look so content snuggled up with that precious child. I know you are thrilled to be able to hold her. We continue to pray for her to keep on improving and be ready to go home soon.
Mark & Roberta
So glad that the three of
So glad that the three of you were able to rest and enjoy the sweet moments of being together as a family! Thank you for sharing those moments with us! So happy for all of you.
Ruby looks so comfortable!
Ruby looks so comfortable! Thanks for sharing these pictures, they made my day!
Oh so sweet.....these
Oh so sweet.....these pictures made my day. Gorgeous happy family!!
(((love and hugs)))
Tami, Chuck and Aisling
Those pictures make me
Those pictures make me smile;-) I love it!!!
These pictures are
These pictures are wonderful. They make smile and feel the happiness!