Ruby had a good day today. The fever she developed after her vaccines remained under control and she seems no worse for the wear. She got all the standard 2-month vaccinations -- rotavirus, DTaP, Hib, PCV, Hep B and IPV. IPV is an enhanced version of the original Inactive Polio Virus developed by Jonas Salk and the University of Pittsberg. They no longer give the oral live polio virus vaccine that previous generations received. This is cool because Ruby's Grandmother was a Polio Pioneer in the Francis Field Trial when they mass-tested the vaccine on a quarter of a million children in 1954. So Ruby is benefitting from her grandmother's own childhood medical efforts.
She stayed up until midnight last night happily playing with her octopus and it was a major source of entertainment today too:
All the play really wore her out by this afternoon and during her weigh-in before breastfeeding, she fell asleep on the scale:
She's finally starting to put on some baby fat and look like a healthy baby, instead of one that didn't eat for the first several weeks of their life. You can really see the chub around her face here:
They had to weight-adjust her zantac today because she no longer weighs 2.8 kilograms -- she' s 3.3 kilograms now. with the increased zantac, she seems to be having a little less trouble with her acid reflux. Her oxygen flow is still at 2 liters and about 25%. Today's progress was on the sedation wean. THey lowered her morphine down to 0.8 -- the same as her Versed. So we expect some crankiness over the weekend.
Hi. My name is Tuoi. I
Hi. My name is Tuoi. I know Malissa Endsley. She told me and everyone at house church about Ruby Hope and we were very concerned. I asked that God reaches out to you guys and send his angels to protect Ruby and be with you and your family during this difficult time. I really admire Ruby's strength. She looks so healthy compared to the previous photos. I've been praying almost every day for Ruby ever since Malissa told us about her condition. You can be sure that we will continue to pray for you and your family.
With much love,
Tuoi
I love the picture of Ruby
I love the picture of Ruby playing with the octopus. She looks so excited and so focused. So sweet. Natalie
Sometimes slow and easy wins
Sometimes slow and easy wins the race.
Hey Ruby & I have something in common,
we are both winners.... and on our own time!
The happy smile in that
The happy smile in that first photo says it all! keep these little gems coming our way when you can, cause we all are so happy that Ruby's progress continues!
marie
She looks like just an
She looks like just an normal baby in that sleeping on the scale picture. :)
Glad to hear she's doing so great!
Lots of love...
Missy, Anthony and Larry
Isn't she so precious? Wow!
Isn't she so precious? Wow! She looks so good. I know it's tough going through this slow weaning process, it must be hard. She is so awesome though. Midnight with her octopus. What a cutie! Miss you all, Sarah
I am loving the photos of
I am loving the photos of Miss Ruby! I'm glad the increased Zantac is helping her! I'm sorry though that she has acid reflux on top of everything else she went through :( Ethan is our reflux baby - maybe Ruby and Ethan can share some Zantac on their first date :)
Ruby is looking amazing. I
Ruby is looking amazing. I was thinking of you guys big time the other day in lieu of lessons in CDH that were definitely made more clear to me this week. Surely, after reading this blog, I had a better understanding of the whole blood pressure ordeal with these babies. I sort of feel like I'm coming out of a haze and rereading prior posts to have a sort of "this is what to expect" guide. Thanks for that. ...also, Ruby was aptly named because she is definitely giving me Hope! From birth to now, she looks so healthy and adorable. Very much ready for a stroll outside. ...I am the future mom to Ireland Rose, and I sure hope she's a fighter like your daughter. Wanting to say that you guys are in our thoughts and prayers. Chanda