Ruby is off of the Versed! Today is the first day of her life that she didn't recieve Versed. She handled it wonderfully. She even tolerated me replacing her NG tube without needing a rescue. She is getting morphine every 12 hours. Hopefully tomorrow it will go down to every 24 hours. Pretty soon there won't be any reason to keep her in the hospital.
Before she can be released she has to pass a car seat test. She has to be able to sit in her car seat for the length of our flight home without having any problems. We brought the car seat in this evening so she could do the test overnight. When we left she was sleeping peacefully in her car seat. Hopefully she handles it for the required three hours.
We don't have a date yet. We know it'll be pretty soon. Just like most other things we won't know for sure until the day before she is discharged. We will stay in Philadelphia for at least 2 weeks once she is released. Then if something happens she is near the Doctors that know her. Whenever we do get discharged I'm sure Ruby will have nothing but smiles.
Last but not least here is Ruby taking a nap on Daddy's lap.
Oh my goodness! Look at
Oh my goodness! Look at that little Ruby, looking so very healthy and happy! I haven't been able to check in for awhile and am so happy to read that she is doing so well. And, she looks so happy and smiley! Just wonderful news!
Continued prayers,
Pam
I am so happy for the
I am so happy for the wonderful news!
Love those smiles! And all
Love those smiles!
And all the happy news. What a journey. I'm so happy for all of you,
Ann
Even Ruby's car seat is punk
Even Ruby's car seat is punk rock! I love that it is bright orange. :) Go, Ruby, Go! I am so excited and keeping my fingers crossed that I can make the drive from Houston to Austin to see you three in September when I am there. Love and hugs from IA.
time for another Happy
time for another Happy Dance!
Way to go ruby! Holly & Chris & CHOP!
Almost time for that victory run up the museum steps!
Great Photos and Great News!
Great Photos and Great News! Congrats to Ruby for weaning off of Versed! Sounds like things are continuing to improve. Awesome! We'll try to have the 100 temps down into the 90s by the time you come back to Austin.
Precious photos, all
Precious photos, all three.
Marie
Way to go Ruby!! I hope you
Way to go Ruby!! I hope you kicked some car seat testing butt last night :)
Yay, Ruby!! I hope she had a
Yay, Ruby!! I hope she had a peaceful night snuggled up in her seat. Oh, I'm getting so excited for you!! Natalie
I hope she passes with
I hope she passes with flying colors!!! It is wonderful that you are so close to going home. I hope everything falls into place until then.
I hope she passes with
I hope she passes with flying colors!!! It is wonderful that you are so close to going home. I hope everything falls into place until then.
Yay, well done Ruby, you're
Yay, well done Ruby, you're on the last 100m! Doesn't she look just like Chris :0). Sorry Holly, looks like all girls are daddy's girls :0). We're so excited for you guys. Little Ruby is doing marvelous!
Ahhh...there is nothing like
Ahhh...there is nothing like a completed list. Keep on checkin Ruby! xoxo Sarah
Thank you for sharing the
Thank you for sharing the miracle of Ruby's life and your love for her. jv