Ruby Hope McKee Starling

It was finally cool enough to take Ruby out on the patio last night.  We got to grill and eat dinner outside.  It has been so hot for so long here.  Ruby gets heat rash pretty quickly so we haven't been taking her outside much.  Last night Chris and Ruby had fun rolling in the grass.  Notice how green the grass is, it actually rained twice in the past couple days!

We noticed last night that Ruby has found her knees, belly button, and feet.  It's so funny to watch her see her feet and get excited about them.  She still can't roll from her tummy to her back on her own.  Developmentally she is doing really well considering every thing she went through.  Some days it's so frustrating because they  don't adjust her age for being on ECMO like they do for preemies.  Even though she is treated "like a preemie a baby" in many ways. She's doing most of the appropriate things for a 4.5 month old.  She has trouble with things involving her head and neck, due to ECMO.  We start PT next week.  I'm curious to hear what her therapist has to say.  Meanwhile we're doing her neck stretches with every diaper change and making sure she gets tummy and bumpo time.

We are hoping for more "cooler"  weather, maybe highs in the upper 90's in the coming days.  We've got some outdoor social engagements  that Ruby's presence has been requested at.