Well...
The roller coaster continues. Just when we think we've caught a brake. Ruby's platelet count was better this morning but not good. She was also not responding to the increase in her sedation medications. Not exactly what we wanted to hear when we walked in this morning. They are no longer considering putting the tube to drain the fluid off her lung. That appears to be the least of our worries this morning.
They have started her on Isoflourine which is a general anestetic and used during surgeries. It was a last resort, and the long term effects on a neonates brain developement is unknown. Her Dr. waited as long as she could before agreeing to putting her on it. Also due to her platelet counts there is huge concern of infection again. They have restarted antibiotics. They will most likely change out her circuit again today. The ECMO circuit change will help them determine if the increased need for blood products is due to the circuit or to an infection or something else in Ruby.
Chris and I will be staying this hospital tonight.
Ok....three steps forward,
Ok....three steps forward, two steps back.
Hope you got better news today that the circuit is the cause for increased blood products. I know this will restart the inflammatory response but hopefully it will be a short lived one with her continuing to get rid of the extra fluid.
Hopefully the need for the Isoflourine is very short lived.
Hope you are able to get some sleep tonight...hugs and love from St. Louis-
Tami, Chuck, and Aisling
Sorry you didn't have better
Sorry you didn't have better news this morning... I hope your day went well!
Sending lots of love.
Hang tough, Ruby. Hang
Hang tough, Ruby. Hang tough.
--Tash
Praying for you all and
Praying for you all and Ruby. Maybe we should tell your fighter to enjoy the meds, not laugh in their face. We hope and pray that the circuit change will be what Ruby needs to get things back on track. Praying for Ruby to stay sedated, lung function, and pee.
I'm sorry, Chris and Holly.
I'm sorry, Chris and Holly. I hope you heard better news today. I'm sending good thoughts your way.
Natalie
We are sending you love and
We are sending you love and hope from the RW pool.
OXOXOXOXOXOJane
Chris and Holly, We are so
Chris and Holly,
We are so sorry that Ruby is having a hard time. We are praying for you and hoping that your little girl will turn the corner very soon.
Praying for you guys and
Praying for you guys and Ruby. "Let me hear in the morning of your steadfast love, for in you I trust. Make me know the way I should go, for to you I lift up my soul."
You are in my thoughts and
You are in my thoughts and prayers!
Hey Holly and Chris-I'm
Hey Holly and Chris-I'm sorry you walked into not so good news this morning. I will be thinking about Ruby and sending her good vibes all day during her circuit change. Lots and lots of love, Sarah
3 steps forward, 2 steps
3 steps forward, 2 steps back?
Ugh...hard stuff to hear. Hang in there!
Love,
Missy, Larry and Anthony